Battle for Savannah and Seattle

Savannah And Seattle both fight incurable diseasesThis is the story of 2 little girls, born 3500 kilometers apart, but connected by an incurable disease, and a friendship that spans a continent.

Savannah is from Charlotte, North Carolina, and Seattle is from Vancouver, Canada. Both these little girls have been battling life-threatening diseases since they were one, and have spent much of their young lives in hospitals and doctors offices.  Savannah has Mitochondrial Disease, which causes poor growth, loss of muscle coordination, muscle weakness, visual and hearing problems, heart disease, liver disease, kidney disease, and many other terrible symptoms.  Her disease has weakened her lungs, so she spends much of her time on oxygen machines.

Seattle has Transverse Myelitis, a neurological condition consisting of an inflammation of the spinal cord. It causes numbness in the limbs, severe pain, and paralysis.  She wakes up in the night in excruciating pain, praying for it to stop. She faces several more surgeries to correct the curvature of her spine, leg, and foot and needs a wheelchair to get around.

Neither of these diseases are curable. Neither of the girls were expected to walk or talk. But no one told them, and they have overcome incredible odds to prove the doctors wrong. They didn’t just walk, but they danced and they ran, and they aren’t giving up.  And they have become long distance best friends.Savannah defied the odds and ran

Their battle is far from over, they still have many medical treatments, most of which aren’t paid for by insurance, even in Canada where medical insurance is covered.  Vancouver actress Leah Cairns , from the tv show Battlestar Galactica, is lending her name and asking her former cast mates to help out.  They have set up a GoFundMe page and are halfway to their goal of $20,000.

These 2 little girls have simple dreams.  They dream of growing up. And they dream of one day meeting each other.  They have become “virtual” best friends, reading each other stories and talking through the internet.  But they have never met.  So Leah has begun a campaign to get the Ellen Degeneres show involved  to bring these girls together,  so that two friends can meet, and see that they are not alone in their fight, and hopefully to raise awareness of their diseases, of which so little is known.

On the weekend of 8th and 9th February they want you to dedicate a few miles to Savannah and Seattle.   They are hoping enough people will walk a total of 3765 miles, which is the distance between each of the girls and Ellen’s studio.  At the gym, in the park, at work, wherever. Running, walking, cycling, rolling in your wheelchair, or however. They are asking that you wear a pedometer or track it on the treadmill. Post a photo one their Facebook page “I Walk For Savannah and Seattle”, and don’t forget to let Ellen know too.

And watch more of their story below:

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